Saturday 2 June 2012

RUN for Nur's New Heart


Warmest greetings to all my friends,

This is a very urgent and important post, please pay close attention. It will only take a few minutes of your valuable time. 

Yestrday morning, at 10.30am, Shariff Abdullah (Singapore Blade Runner) accompanied by his team, visited a very special girl by the name of Adlea Ry'Kyla Muhammad Ghazali at KK Women's and Children's Hospital. Nur, as she is affectionately known as, is a four year old girl who has myocarditis - a rare heart condition. As a result, her kidneys have deteriorated and she has a bloated abdomen, which presses against other organs, causing breathlessness, severe pain and fever. News about Nur has been spreading through the internet like wildfire, but the donations don't seem to reflect the number of likes or shares. When Shariff Abduallah first came to know about this, he felt a deep connection to Nur's condition as his daughter suffers from a similar condition. He wants to do something more, as he understands the amount of pain that Nur and her mother, Norleen, are going through. He contacted his team, in hope to translate all of the support for Nur into action.

Shariff and his team approached Norleen, Nur's mother, to seek permission to hold a fund and awareness rasing run for Nur. We were only allowed to look at the beautiful young girl from behind a glass window as visitors might cause her to panic. As her mother walked towards the door to speak to us, she started screaming and reaching out her hand, crying out for her mother as she sensed that she was leaving her side. The mother, spoke to us, altough she managed to still muster up a smile on her face, the pain she was going through was clearly evdient.


Arafat Aziz, Shariff's Manager, explained to Norleen the purpose of the run and the fact that within the running community in Singapore, they have a big heart for Norleen, so it would be a good idea to do something more for little Nur, as a stong and united Singapore Running Community. Norleen was very grateful, she wished us all the best and thanked us profusely. In fact, she's the real hero, as a mother to stay by Nur's side and going through the painful journey with her. So, the team thanked Norleen, the team walked out of KKH with a purpose.

Is there still light at the end of the tunnel, yes there is. But this light, it is in our hands. The only hope for Nur, is a new heart. But there is no heart transplant programme for children as young as Nur in Singapore. So she has to go overseas for a heart transplant, and that comes with a hefty pricetag. According to Mdm Norleen, the doctors at KKH said that there is almost "no-hope" for Little Nur to survive. They said she has less than a month to live. Time is running out fast, it's time to act right now. Her life, is in our hands.

What Team SBR Plans to do:
We want to unite runners from all over the little red dot, we may be different in pace, style, appareal, but one thing that unites all runners alike is their heart of gold. Let us all run for a cause.
This Sunday (03/06/2012) at Angsana Green, East Coast Park, we will run for a reason, we will run for a new heart. We will be covering a distance of 10km, as a group. We want to show Norleen and Nur, that they are not alone, they will never be alone. Everyone of us are with them, through this journey. We just have to believe, and take action, and god willing Nur will get back up again.

At East Coast Park as the group is running, we need a team of youths, to give out flyers to spread the word about Nur. Please do step forward and contribute a few hours of your time, you might be the reason that Nur lives to see another day. Interested Volunteers please contact Ariffin Sha at 90908905

This is the link to the Facebook Event Page of the run: http://www.facebook.com/events/127731540697208/

TO MAKE YOUR CONTRIBUTION:

If you would like to use online payment system (debit/credit cards -- visa/mastercard/amex/discover) please go here >http://littlenurheartfund.chipin.com/

If you prefer to use bank to bank transfer (ibanking) or cash deposits, please deposit your donation to >

POSB SAVINGS: 247-587-853(This is a joint account of Nur's parents for the purpose of collecting public's monies for Little Nur's Heart Fund. The same account is being used to collect monies from other charity bodies/organizations/individual donors).

For cheque can be mailed to :NORLEEN BINTE OSMAN. Blk 406, Ang Mo kio Ave 10. #10-727 Spore (560406).

For donation by hand : KKH WOMENS AND CHILDRENS HOSPITAL. WARD 65 BED 2.

Here is the latest update on the status of the online donation drive..



Allow me to explain some of the reasons behind this run.

1) Why this Sunday? Isn't it too much of a rush? Time is not on our side, it is running out very fast. It's now or never. Altough the run is this Sunday, the online donations will be open till 8 June. The other methods of donations will still be open after that date. The $200,000 stated in the online donation website is just a small fraction of the total amount needed for the Heart Transplant.

2) Why 10km? Originally we planned to do a special 4-hour endurance challenge, but then we decided not to. The reason was simple, this is not about one man's struggle, altough we might not be able to ever understand what Nur was going through, we have got to let Nur and Norleen know that they are not alone, they will never be alone in this fight. It's about all of us coming together to let Nur have a new heart. 
Let me paint a picture for you, the more people run (donate), the shorter the distance become. One lonely person's stuggle will be changed into millions doing a small part to help this beautiful young lady.

Come on guys, we both know clicking the like button and then ignoring this post isn't going to change anything. Please, let's put our negligance aside and act now. What if it happens to one of our own family members? We might never know. Whether Nur survives or not, we will do our absolute best, the rest is in God's hands. I do not know if we will succeed or not, but we will do our best. It's the least we can do as a runner and a fellow member of the muslim community.

Share this to every single soul you know, tag everyone, spread the word fast, the clock is ticking.

You can donate, or run with us this Sunday too, if you are a non-runner help out in giving out the flyers. 

Thank you so much for reading this, miracles are just a translation of hardwork. Let's all make a miracle happen.



Isn't she beautiful?

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